Lived experiences, stigma and impacts of lymphatic filariasis: a scoping review

Abstract

Lymphatic filariasis is a profoundly neglected tropical disease (NTDs). While global research has largely focused on the prevalence and clinical manifestations of LF; there is a dearth of information, limited attention has been given to the psychosocial dimensions of the condition. This scoping review highlight on the lived experiences and self-reported impacts among people with lymphatic filariasis. Studies were included if published between 2000 and 2025 in a peer-reviewed journal, reported the lived experience, stigma, and self-reported mental health impact, presented a qualitative report, and fell within the healthcare domain. Searches were conducted across five databases. Duplications were removed and data was extracted and synthesized using a pre-designed Microsoft Excel spreadsheet. Seven themes emerged from the included studies: (1) Experiences of diagnosis and disease onset, (2) Emotional and psychological consequences, (3) Stigma, discrimination and social exclusion, (4) Social, family and community dynamics, (5) Economic and occupational impacts, (6) Healthcare access, dynamics and treatment, (7) Expressed needs and desired change. Family and community support were found to improve coping, though such support is inconsistent. Strengthening health systems, enhancing provider training, and implementing public education initiatives are essential to improve diagnosis, reduce stigma, and promote inclusive care for individuals affected by LF.