Experience of People Living with Leprosy at Leprosy Settlements in Nigeria

Abstract

This research explores the experience of people living with leprosy at leprosy settlements in Nigeria. This is a concurrent mixed methods design whereby questionnaires, focus groups and interviews are conducted simultaneously. Seven leprosy communities were visited, one from Nigeria’s six geographical zones and the Federal capital area. This study included 35 leprosy patients, 21 family members, seven community leaders, and seven officers in charge of the leprosy settlements. Also questioned were two heads of organisations involved with leprosy control in Nigeria. Majority (93.7%) of the respondents have access to healthcare in the health centres. Majority (95.2%) are interested in learning self-care practices for skin-related neglected diseases. About three-fourths (74.6%) receive free healthcare and accent that PLWL are admitted into the same ward as other patients. Whilst funding is a growing concern for leprosy control, the data from the interview confirmed that there is little support from the government but more from non-governmental organisations and implementing partners in Nigeria for people living with leprosy. Experts demonstrated that leprosy now ranks high among neglected diseases. The Nigerian government must work with partners to ensure the improvement and sustainability of leprosy control programs.