article · Journal of Medical Ethics

Awareness, experiences and perceptions regarding genetic testing and the return of genetic and genomics results in a hypothetical research context among patients in Uganda: a qualitative study

Joseph Ochieng
Betty Kwagala
John Barugahare
Marlo Möller
Keymanthri Moodley

20243 citationsOpen accessMakerere University

Abstract

There was general awareness and support for GGR and the return of results. Stigmatisation emerged as a barrier to disclosure of results for some. Global health inequity impacts access and affordability of genetic testing and counselling in Africa and should be addressed as a matter of social justice.

Research topics

Ethics in Clinical Research
BRCA gene mutations in cancer
Genomics and Rare Diseases

Sustainable Development Goals

16Peace, Justice and Strong Institutions

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DOI: 10.1136/jme-2022-108885

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