Arabic Translation of The Caregiver Priorities and Child Health Index of Life with Disabilities CPCHILD Scale

Abstract

Abstract Background Children with cerebral palsy have difficulties in daily life activities (feeding, toilet training, dressing), communication, and mobility. The children’s independence and quality of life decrease when their performance in activities of daily living is reduced. Evaluation of motor function for affected children with cerebral palsy (CP), individual needs and goals of these patients and their parents is still lacking and needs to be further addressed. The CPCHILD is a multidimensional patient centered assessment tool. Aim of the Work Our aim is to translate and provide an Arabic version of the CPCHILD for assessing the caregivers’ perceptions of the health status, comfort, wellbeing, functional abilities, and quality of life for their children with cerebral palsy. Patient and Methods This study was a cross sectional study, conducted at Pediatric Neurology Clinic at Children’s Hospital, and Physical Medicine Outpatient Clinic at Ain Shams University Hospitals. The CPCHILD was translated from English to Arabic with the agreement of the scale's owner. The Arabic version was provided through translation and back translation process, which was then presented to the caregivers of CP children for evaluation of the perspectives and quality of life for their children. Results An Arabic version of the CPCHILD scale was created. The enrolled caregivers for children with CP were the biological mothers. The mothers of the CP children were able to understand and respond to the translated scale and reported poor mean total CPCHILD score 26.45 (0-58.3). Conclusion The Arabic version of the scale was provided through translation and back translation process and the version was prepared for subsequent validation tests. The translated version will help in applying the scale in the caregivers' language in a culture proper setting and can be helpful in the assessment of health-related quality of life of children with CP.